PARKINSON'S DISEASE QUOTES

quotations about Parkinson's Disease

Parkinson's Disease quote

There's an idea I came across a few years ago that I love. My happiness grows in direct proportion [to] my acceptance and in inverse proportion to my expectations. That's the key for me. If I can accept the truth of 'This is what I'm facing -- not what can I expect but what I am experiencing now' -- then I have all this freedom to do other things.

MICHAEL J. FOX, "Michael J. Fox Is Feelin' Alright After 20+ Years With Parkinson's", AARP, April/May 2013

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It must be borne in mind that most Parkinsonian patients remain mentally alert even as their physical condition becomes severely impaired. At the same time, they are normally extraordinarily self-conscious about their infirmities ... Tremors, speech impediment, walking difficulties, all make one not only impatient with oneself, but also often ill-at-ease with others.

FM HOWARD, attributed, Parkinson's Disease and Quality of Life

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With Parkinson's, it's like you're in the middle of the street and you're stuck there in cement shoes and you know a bus is coming at you, but you don't know when. You think you can hear it rumbling, but you have a lot of time to think. And so you just don't live that moment of the bus hitting you until it happens. There's all kinds of room in that space.

MICHAEL J. FOX, Good Housekeeping, June 2011

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Parkinson's is my toughest fight. No, it doesn't hurt. It's hard to explain. I'm being tested to see if I'll keep praying, to see if I'll keep my faith. All great people are tested by God.

MUHAMMAD ALI, Esquire, February 2012

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I couldn't sing, and I couldn't figure out why. I knew it was mechanical. I knew it had to do with the muscles, but I thought it might have also had something to do with the tick disease that I had. And it didn't occur to me to go to a neurologist. I think I've had it for seven or eight years already, because of the symptoms that I've had. Then I had a shoulder operation, so I thought that's why my hands were trembling. Parkinson's is very hard to diagnose, so when I finally went to a neurologist and he said, 'Oh, you have Parkinson's disease,' I was completely shocked. I wouldn't have suspected that in a million, billion years. No one can sing with Parkinson's disease. No matter how hard you try.

LINDA RONSTADT, "Linda Ronstadt Talks about Her Parkinson's Disease in Rare Interview Since Announcing the Diagnosis Las Year", Music Times, November 22, 2014

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When a friend or family member is diagnosed with Parkinson's, there are many battles that need to be tackled. Most importantly, support, love and understanding are imperative for the sufferer, the carer and the families.... Do a lot of encouraging and try your hardest to continue on in a normal way.

GABRIELLA ROGERS, Living with Parkinson's

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How do we wrestle with this beast? Living with an incurable disease like Parkinson's is very different from living with a terminal illness. This is a disease you're going to live with for a very long time. You really have to make peace with it.

CONNIE CARPENTER-PHINNEY, "Olympic cyclist shares his secrets to 'living well' with Parkinson's", Deseret News, February 21, 2016

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When I start pouring [cereal], I don't know what's going to happen. The next thing I know, I'm spraying All-Bran all over the kitchen.

MICHAEL J. FOX, "Michael J. Fox Is Feelin' Alright After 20+ Years With Parkinson's", AARP, April/May 2013

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I have to ask people to do things for me that are hard. That's been the hardest thing, I think. It's harder to go out and do things. I'm not driving anymore. I'm not quite sure of my reflexes.... I don't want to go anyplace where I might get confused. I can really drive fine, but I just don't go out by myself that much anymore. I live like a person with a disability now.

LINDA RONSTADT, "Linda Ronstadt on living with Parkinson's disease", CBS News, September 20, 2013

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The funniest thing was how I discovered the Parkinson's. I was doing the Conan O'Brien chat show in LA and they put me up in a hotel. I was walking through the lobby and there was a crowd of youngsters. I'd seen them every day and I knew they knew me. I could see them looking over. They were Australian and this guy said, "Mr Connolly, I don't want to take up your time but I'm a doctor. I specialise in Parkinson's disease. I've been looking at the way you walk and it seems to me you have the gait of someone with early onset Parkinson's. See a doctor." The first thing I thought was, "How rude! How dare you!" I was having dinner with my son that night ... and he agreed it was rude. But I went to a doctor who put me onto a specialist and he said, "Yeah." That was the week from hell. Parkinson's and prostate cancer. Actually, it got quite funny. I was saying, "What's going to come next?" to Pamela. I'd be pretending to limp, saying, "Now my knee's gone."

BILLY CONNOLLY, "My battle with Parkinson's: As he picks up a special National Television Award, Billy Connolly talks candidly about how he's tackling the cruel effects of the disease", Daily Mail, January 8, 2016

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For everything this disease has taken, something with greater value has been given--sometimes just a marker that points me in a new direction that I might not otherwise have traveled. So, sure, it may be one step forward and two steps back, but after a time with Parkinson's, I've learned that what is important is making that one step count; always looking up.

MICHAEL J. FOX, Always Looking Up

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Instead of fighting with Parkinson's and it's debilitating symptoms, patients, and their families are better served to find new ways to live a full life.

AMY DONALDSON, "Olympic cyclist shares his secrets to 'living well' with Parkinson's", Deseret News, February 21, 2016

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I often say now I don't have any choice whether or not I have Parkinson's, but surrounding that non-choice is a million other choices that I can make.

MICHAEL J. FOX, interview, "The Most Optimistic Guy in Hollywood", beliefnet

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I'm going to be totally honest with you. Dealing with a diagnosis of Parkinson's is not easy and there is no one, single technique that will ease the pain and no magic pill that will miraculously enable you to cope with it. However ... I sincerely hope that you are able to come to terms with the diagnosis and perhaps even come to view it as a positive life-changing experience.

JOHN BAXTER, Early Onset Parkinson's: A Guide to Living with the Condition

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If I'm at events and I'm clapping, my mind will say, 'Stop clapping,' but I just keep going. Tracy says, 'You're always the last one clapping.' I swear, it's not out of appreciation -- it's out of disintegration. You have to laugh at that.

MICHAEL J. FOX, "Michael J. Fox Is Feelin' Alright After 20+ Years With Parkinson's", AARP, April/May 2013

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People with Parkinson's can often mitigate effects by keeping active and engaged in the community. But doing so can be difficult because Parkinson's can make them want to withdraw. This can be a symptom of the disease's main effect on the brain, destruction of dopamine -- a neurotransmitter involved in regulating movement, pleasure and motivation, among other roles. There's a real catch-22 because often you don't feel like getting up and going. It's hard to get started, but the sooner you do and the more you do, the better and easier it will get as time goes on.

JOEL SCHLESINGER, "Camaraderie today, a cure tomorrow", Winnipeg Free Press, March 21, 2016

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I am part of a high-profile club. The condition has some celebrity sufferers, including boxer Muhammad Ali and actor Michael J. Fox. Both have had their careers stumped by the condition and while I have never been in the ring or on the big screen, Parkinson's has hit me in the same way.

ELAN SHOFFMAN, "Parkinson's took my voice--now I need to get it back for my daughter's wedding", The Telegraph, March 8, 2016

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My way of dealing with Parkinson's is to keep myself busy and ensure my mind is always occupied.

DAVID RILEY, "Sutton Parkinson's sufferer fights disease by staying active", Craven Herald & Pioneer, March 19, 2016

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The main problem we have right now with Parkinson's disease is that we have no therapies that help to slow the progression of the disease definitively or reverse the damage that has already occurred within the brain. We have lots of treatments for symptoms of Parkinson's disease but nothing that actually alters the course of the disease. So gene therapy offers the potential to alter the course of the disease, and that's why we are very excited about the opportunity for gene therapy to play in the future for Parkinson's treatment.

JILL OSTREM, interview, "Latest Advances in Parkinson's Disease", UCSF Medical Center

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The first thing I read after being diagnosed on the internet was Parkinson's attacks the mind, body and the spirit. There is one thing that treats all three and that's hope. That's very true, you have to live with hope.

GORDON ADAIR, "BBC's Gordon Adair has Parkinson's but he also has hope, which is why he gave his daughter that special name", Belfast Telegraph, January 14, 2016

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